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12-03-2012 at 10:10 AM
jbrosenk
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Joined on 10-29-2012
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jbrosenk is not online. Last active: 06-18-2013, 8:48 PMNewbie

Cord Blood Banking?

What does everyone think about Cord Blood Banking? Are you planning to do this? Do you think it is worth it?
 
12-03-2012 at 10:50 AM
Shel79
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Shel79 is not online. Last active: 06-19-2013, 7:19 PMNewbie

I still need to discuss it with my doctor, but DH and I are strongly considering it for our twins.  It is definitely expensive, and chances are that we will never need to use it.  But I keep thinking that on the off chance one of our girls does have some need for it later in life, how awful would I feel that I missed this opportunity?  Plus, I think stem cell research and this medical stuff is pretty cool anyhow, so it doesn't bother me to help contribute to that cause. 

One of my co-workers went with Cord Blood Registry (CBR) for both of his kids, and he strongly recommended that company.  It also makes me feel better that someone I know has done this and can talk me through the process before I send away lots of money! 


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12-03-2012 at 11:25 AM
vonnie
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North Carolina
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vonnie is not online. Last active: 01-10-2013, 4:26 PMNewbie

I know I'm new and haven't posted a lot, but here's my obligatory 'I work in the industry and here's my spiel" post.. I just want to give you a few different sides and considerations, not to sway you in any way.   This is a decision for you and DH to make, and you do what you feel is best for you and your family!  This is a long one. I'm sorry in advance!!!!!

 I work for a public cord blood bank & pediatric transplant program.  I'm going to be honest, CBR/Viacord and all of those types have HUGE marketing budgets and schemes to make it seem like if you don't bank, you're doing a disservice to your family and your child.  However, currently there are no medical indications for using a child's own cord blood.  If you have another child with cancer, or any of the rare metabolic diseases they list in their marketing materials, hands down you need to bank your baby's cord blood.

 If something should happen to one of your children, such as cancer or the aforementioned diseases, you cannot use the child's own cord blood.  A sibling cord blood has a 1 in 4 chance of matching, and you have higher odds of finding a better match on the public registry _most_ of the time.

 Also, many private cord blood units have too small a cell count or volume, or are contaminated and cannot be used.  We published a paper describing the poor quality of private vs. publicly banked units.  A private cord blood bank will take your unit (and your money) no matter what, even if it's not able to be used. 

 Now that doesn't mean there aren't advances that are going to come using cord blood. Currently, we're doing a study on using the child's own cord blood for children that have been diagnosed with cerebral palsy.  It's still in the early stages, and we need to do a lot more research, but it is possible that it can help children who have acquired brain injuries like this. We are also developing treatments by using donor cord blood, too. 

 The American Academy of Pediatrics recommends public donation rather than private donation. I personally highly recommend public donation.  These units go to children around the world who are in need of a transplant and desperately depend on public donations to live.  There are kit programs that you can work with at no cost to you to donate your baby's cord blood (this goes for anyone!).  For more information about public cord blood donation http://marrow.org/Get_Involved/Donate_Cord_Blood/Donate_Cord_Blood.aspx


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12-03-2012 at 12:32 PM
SlopesShre...
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SlopesShredder is not online. Last active: 06-16-2013, 3:57 PMBronze
I donated it last time... and will probably do the same now.

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12-04-2012 at 11:37 PM
nbourre
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nbourre is not online. Last active: 05-28-2013, 12:41 PMNewbie
I banked for all 3 kids, and hope to never have to use it.  I was actually just reading an article about an exciting new Australian study:  "Australian study will examine whether umbilical cord blood could prevent or delay type 1 diabetes in high risk children" http://ow.ly/fPKjZ  Looking forward to seeing those results.
 
12-05-2012 at 7:31 AM
Michmax11
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Michmax11 is not online. Last active: 06-17-2013, 11:40 AMNewbie
vonnie:

 The American Academy of Pediatrics recommends public donation rather than private donation. I personally highly recommend public donation.  These units go to children around the world who are in need of a transplant and desperately depend on public donations to live.  There are kit programs that you can work with at no cost to you to donate your baby's cord blood (this goes for anyone!).  For more information about public cord blood donation http://marrow.org/Get_Involved/Donate_Cord_Blood/Donate_Cord_Blood.aspx 

I've been looking at donation - even visited the above site yesterday, but I'm finding that where I live there aren't a lot of options for donation.  I'm in the Dallas Texas area, and only 2 hospitals (neither of which my OB work at) that are on the list of participating hospitals for cord blood donation.  I saw there is a chance of getting to donate from other hospitals, but I'll have to fill out the request form after 28 weeks - and that's not a guarantee.   

I wish there were more options for donation - I think it would benefit so many. 


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