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12-06-2012 at 7:30 AM
brooklynes...
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Joined on 08-10-2011
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brooklynesque is not online. Last active: 05-17-2013, 7:10 AMSilver

Where to seek a second opinion in NYC

Hi, ladies.  I haven't intro'd on here yet; I've refrained because though I've been on the IF board since early this year I took a few-month break after the failure of my first IVF cycle and have only been back for a couple of months.  But I've been with you quite a while in spirit and will "officially" intro when I've been back a little longer.

In the meantime I was hoping the East Coasters among you could help me with a question.  As you see from my siggy, I've got a fairly rare issue where my IVFs yield almost no mature eggs -- even though everything looks fine up to retrieval (stimming fine, not a bad number of follies/eggs, normal estrogen for the number of follies).  I love my RE -- I'm at NYU -- but before I go forward with another IVF I think it would probably be wise to seek a second opinion to make sure I'm not missing out on any brilliant ideas for dealing with my situation.

So my question is this:  Where else would you go if you were me?  I know CCRM is great but I have a new job and being gone for 10 days anytime soon just isn't going to fly.  So I'd prefer to talk to other REs in the NY area who have reputations for being problem-solvers.  I know Cornell is quite well-respected, but are they too big to want to think outside the box for someone like me?  I'm also intrigued by SIRM because Dr. S.her in Vegas has written several blog and message board posts discussing issues similar to mine but I don't know anything about his NY office.

I'd be grateful for any suggestions or comments any of you might have. 
Me: 39. DH: 41. TTC since 2009.
FSH: 9.5 at highest. AMH (11/2011): 0.9. AFC: 10ish. HSG: Normal. SA: Normal.
July 2011 - Feb. 2012: 2 Clomid/TI cycles; 3 injectables/IUI cycles. Good response but BFNs.
Dec. 2011: Laparoscopy (clear) + hysteroscopy to remove uterine polyp.

April 2012: IVF #1: FSH 9.2, AFC 7-8. Antagonist protocol.
Started stims (300iu Gonal-F, 150iu Menopur) 3/28.
Added ganirelix 4/1. Trigger 4/5 (7 follies). ER 4/7: 7R, 0M, 0F. :-(

Nov. 2012: IVF #2: Long Lupron protocol.
Started Lupron 10/27. AFC 10+. Started stims (300iu Follistim, 150iu Menopur) 11/8.
Trigger 11/18 (7 follies). ER 11/20: 9R, 1M, 1F. 3dt of my one 6-cell embie on 11/23: BFN.

Dec. 2012: Hail Mary IUI cycle with leftover IVF meds: BFN.

Feb. 2013: IVF #3: Estrogen priming protocol.
Pre-AF: estro patch + ganirelix. AFC 8-10. Started stims (450 Follistim, 150 Menopur) 1/28.
Added ganirelix 2/4. Combined Lupron/HCG trigger 2/10 (6-ish follies).
ET 2/12: 6R, 1M, 1F w/rescue ICSI. My embie didn't make it. :-(

July 2013: DE IVF #1

PAIF/SAIF/PA35 welcome.
Daisypath Anniversary tickers 
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12-06-2012 at 9:08 AM
luvboston
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2,419 Posts
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luvboston is not online. Last active: 05-18-2013, 10:52 PMSilver

#1 run for you life away from Dr.Sher in Las Vegas, I had the worst cycle of my life there.

#2 I went to Dr. Tortoriello in NY he did a superb job with my IVF however any of the Sher institutes I have come to find out too late do not have as up to date info on immune issues so if you run into an immune issue I would go with Beer immunology in CA as they can take care of you long distance. 

#3 I went to Dr. Braverman in NY and I would not go to him because he acted like a complete jerk and his staff is awful. 
6 m/c
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Yours doesn't have to be a sad story

PAIF/SAIF ALL WELCOME
BabyFruit Ticker 
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12-06-2012 at 9:34 AM
strudel82
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Joined on 02-07-2012
558 Posts
5,097 Points
strudel82 is not online. Last active: 05-15-2013, 9:33 PMBronze

Sig warning**

 

 

 

I haven't cycled there, but Dr. Miller at North Hudson IVF in Englewood Cliffs NJ has a reputation for working with exceptional challenges (not saying that's what you are, just that it's her reputation!) so they might be more receptive to out-of-the-box options.

ETA: Blah, I didn't realize I was on IFV and can't delete my post ... I haven't intro'd here. Sorry for the rogue post!
TWINS! Via DE IVF Lilypie Premature Baby tickers 
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12-06-2012 at 9:36 AM
luvboston
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2,419 Posts
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luvboston is not online. Last active: 05-18-2013, 10:52 PMSilver
Also i think it would be worth you having a phone consult with CCRM to see what they say as they are the top in the country.
6 m/c
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone)
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Yours doesn't have to be a sad story

PAIF/SAIF ALL WELCOME
BabyFruit Ticker 
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12-06-2012 at 11:55 AM
hootie123
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Joined on 11-16-2007
Buffalo, NY
3,784 Posts
6,453 Points
hootie123 is not online. Last active: 05-18-2013, 9:06 PMSilver

I don't think it ever hurts to get a second opinion.  We did that as well after two failed IVFs.  Then after two more we got a 3rd, 4th, 5th and 6th opinion.    I have talked with CC.RM, C.ornell and S.IRM-NYC.     My case is different than yours - but I got a really different opinion from C.ornell than I did the others [the only change he suggested in my case was to trigger me one day earlier].   I was very doubtful of that actually being our problem - so we decided to not go that route.  We are going to go with S.IRM and working with Dr. T.  

Good luck!  


TTC #1 since 6/09
Dx: PCOS and MFI
3 IUIs, 4 IVFs = BFFN
IVF #5/FET = ??
P/SAIFW 
 
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12-06-2012 at 6:38 PM
brooklynes...
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Joined on 08-10-2011
2,638 Posts
15,191 Points
brooklynesque is not online. Last active: 05-17-2013, 7:10 AMSilver
Thanks for your responses, everyone.
Me: 39. DH: 41. TTC since 2009.
FSH: 9.5 at highest. AMH (11/2011): 0.9. AFC: 10ish. HSG: Normal. SA: Normal.
July 2011 - Feb. 2012: 2 Clomid/TI cycles; 3 injectables/IUI cycles. Good response but BFNs.
Dec. 2011: Laparoscopy (clear) + hysteroscopy to remove uterine polyp.

April 2012: IVF #1: FSH 9.2, AFC 7-8. Antagonist protocol.
Started stims (300iu Gonal-F, 150iu Menopur) 3/28.
Added ganirelix 4/1. Trigger 4/5 (7 follies). ER 4/7: 7R, 0M, 0F. :-(

Nov. 2012: IVF #2: Long Lupron protocol.
Started Lupron 10/27. AFC 10+. Started stims (300iu Follistim, 150iu Menopur) 11/8.
Trigger 11/18 (7 follies). ER 11/20: 9R, 1M, 1F. 3dt of my one 6-cell embie on 11/23: BFN.

Dec. 2012: Hail Mary IUI cycle with leftover IVF meds: BFN.

Feb. 2013: IVF #3: Estrogen priming protocol.
Pre-AF: estro patch + ganirelix. AFC 8-10. Started stims (450 Follistim, 150 Menopur) 1/28.
Added ganirelix 2/4. Combined Lupron/HCG trigger 2/10 (6-ish follies).
ET 2/12: 6R, 1M, 1F w/rescue ICSI. My embie didn't make it. :-(

July 2013: DE IVF #1

PAIF/SAIF/PA35 welcome.
Daisypath Anniversary tickers 
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12-07-2012 at 8:35 PM
Mrs.McIris...
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Joined on 06-15-2009
7,144 Posts
32,518 Points
Mrs.McIrish is not online. Last active: 05-18-2013, 10:00 PMGold
If you can't get to CCRM, I would think that Dr Da.vis at Cornell might be up for the challenge. This may intrigue him to figure it out. 

TTC #1 since 8/1/10; Me:39 and BRCA1+, DH:45
DOR (FSH 24.3)/ terrible egg quality
5 IUI's: 2/11 to 6/11 and 1/12= BFN
OE IVF#1-4 8/11-6/12= all BFN
DE IVF#5 11/12 bad embryos= BFFN
FINAL DE IVF #6 1/13: cancelled as second donor backed out during stims
Was added last minute as 3rd recipient to new donor on 1/18; ET1/23/13
2/1/13 BFP for the first time ever; Beta hell for several weeks: miscarriage 7 wks
CFNBC ...Me &You, Just Us Two...
GradyPhotobucket
Riley
RIP Riley 1/4/12
PAIF/SAIF Welcome  
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12-08-2012 at 1:21 PM
brooklynes...
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Joined on 08-10-2011
2,638 Posts
15,191 Points
brooklynesque is not online. Last active: 05-17-2013, 7:10 AMSilver
Thanks, McIrish.  I'm going to check him out, along with Dr. T at SIRM.
Me: 39. DH: 41. TTC since 2009.
FSH: 9.5 at highest. AMH (11/2011): 0.9. AFC: 10ish. HSG: Normal. SA: Normal.
July 2011 - Feb. 2012: 2 Clomid/TI cycles; 3 injectables/IUI cycles. Good response but BFNs.
Dec. 2011: Laparoscopy (clear) + hysteroscopy to remove uterine polyp.

April 2012: IVF #1: FSH 9.2, AFC 7-8. Antagonist protocol.
Started stims (300iu Gonal-F, 150iu Menopur) 3/28.
Added ganirelix 4/1. Trigger 4/5 (7 follies). ER 4/7: 7R, 0M, 0F. :-(

Nov. 2012: IVF #2: Long Lupron protocol.
Started Lupron 10/27. AFC 10+. Started stims (300iu Follistim, 150iu Menopur) 11/8.
Trigger 11/18 (7 follies). ER 11/20: 9R, 1M, 1F. 3dt of my one 6-cell embie on 11/23: BFN.

Dec. 2012: Hail Mary IUI cycle with leftover IVF meds: BFN.

Feb. 2013: IVF #3: Estrogen priming protocol.
Pre-AF: estro patch + ganirelix. AFC 8-10. Started stims (450 Follistim, 150 Menopur) 1/28.
Added ganirelix 2/4. Combined Lupron/HCG trigger 2/10 (6-ish follies).
ET 2/12: 6R, 1M, 1F w/rescue ICSI. My embie didn't make it. :-(

July 2013: DE IVF #1

PAIF/SAIF/PA35 welcome.
Daisypath Anniversary tickers 
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12-09-2012 at 1:35 PM
jadwedd
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Joined on 04-29-2003
1,453 Posts
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jadwedd is not online. Last active: 05-18-2013, 10:36 AMBronze
Hi!  I see Dr. Traub.  Here is the website http://ivfny.org/ He is the best.  He has the nicest staff and I would reccommend them to anyone.  He is in Staten Island and South Plainfield, NJ (about 30 minutes from Staten Island).  Good Luck!
Married 12-12-04
TTC since 07
me-36 PCOS, Tubal Problems, and polyps removed 7-12
DH - 36 extremely handsome and no fertility problems
IUI 8-12 and 9-12 failed
IVF 12-21-2012 - 2 I think perfect no matter what the dr graded them (2B)embryos transferred Beta on 12-31-12 Positve - Beta is 21
Beta 2 1-2-13 - 31
Beta 3 1-4-13 - 53
Beta 4 1/9 - 212!
Ultrasound 1/10 - Nothing completely empty uterus Beta 1/14 - 743; Beta 1/17 - 1704 ultrasound shows nothing. Officially a miscarriage. 1/21 Beta 3900 Dr. says it ectopic. Ultrasound shows a miracle heartbeat right in the uterus where it belongs! Dr. says I can be cautiously optomistic!!! Hang in there baby!

 
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12-12-2012 at 12:53 PM
solnyshko7...
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Joined on 10-23-2009
New York, NY
190 Posts
192 Points
solnyshko79 is not online. Last active: 03-08-2013, 3:42 PMNewbie

based on my experience, these are the ones to go to in NY:

1) Drew Tortoriello at SIRM

2) Jeffrey Braverman. I had personal success with him and I think he is one of the best, if not the best! NYU does not even compare. Cornell will not work with immune or thrombo issues. Braverman consults on Cornel ( dr Davis) cases that need immune/thrombo treatment.

 

Good luck!




TTCsinceFeb2010NotOvulating,no+OPK,noEWCM.Midcyclespottingandannovulatorycycleafterwards.StartedchartingJune2010.StartedVitex,chineseherbsandaccupunctureinMay2010> 
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12-12-2012 at 1:01 PM
solnyshko7...
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New York, NY
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192 Points
solnyshko79 is not online. Last active: 03-08-2013, 3:42 PMNewbie
Also dr T is quite laid back with meds, while dr B is aggressive. I chose dr B approach and had a healthy baby, while with dr T i had a m/c.




TTCsinceFeb2010NotOvulating,no+OPK,noEWCM.Midcyclespottingandannovulatorycycleafterwards.StartedchartingJune2010.StartedVitex,chineseherbsandaccupunctureinMay2010> 
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