oh hun, I am sorry I know this is very frustrating. My nephew has chronic kidney disease, the run around from this specialist and that one is insane and incredibly frustrating. He has a swallowing aversion and has to be fed with a feeding tube, one doctor says to see a nutrtionist another says an slp will help. He also has reflux and would only drink 1oz at a time as an infant.
I hope you get some answers that you can cope with soon and learn how to help him.
we are here for you!