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11-13-2012 at 12:42 PM
Enchanted6...
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Enchanted616 is not online. Last active: 05-22-2013, 12:58 PMBronze

Well, that was fast.

We already have our diagnosis.  MH has congenital bilateral absense of the vas deferens.  From what I understand, it is a mutation of the cystic fibrosis gene. I need to have genetic testing before we can move foward, but our only option is IVF with ICSI.  This is pretty rare, but our uro is 100% positive MH is producing sperm, he basically just doesnt have the correct parts to move them out of the testicles.

Our next step is to meet with a genetic counselor, then an RE. 

I feel so sad.  I don't really have any other words. 


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Finished BC and not preventing since June 2010.
Actively trying for baby #1 since July 2011.
SA completed 5/29/2012. No sperm found.
11/12: Dx: Congenital Bilateral Absense of the Vas Deferens.
Genetic Testing needed as this is a mutation of Cystic Fibrosis.
IVF #1 with ICSI planned for 2013.
PAIF/SAIF welcome!  
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11-13-2012 at 12:46 PM
J&D2007
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J&D2007 is not online. Last active: 04-28-2013, 8:12 AMBronze
I'm so sorry about the diagnosis.  But, at least they know what is wrong and there are ways to get around it, right? It sounds like with Ivf, your chances will still be great! I think all the diagnostic testing is the worst part of IF. Once you know what you are facing it gets a lot easier and you will be able to move forward with a more positive outlook.

Me: 35, DH: 36, ttc: 3+ years, dx: unknown
10/11: after 2 years, saw a RE, FSH 5.4
11/11: BFP! (surprise after thyroid med & normal hsg),
12/11: missed m/c after 7 week u/s,
1/12: D&C,
6/12 IUI #1: clomid, 5 mature follicles, excellent sperm,= BFN,
7/12: IUI #2: clomid, 3 mature follicles, excellent sperm= BFN,
8/12: IUi #3: clomid, 5 follicles, = BFP!, C/P
10/12 IVF #1: FSH 5.4, estradiol AFC: 14, long Lupron 150/bravelle75,5R/5M/4F, all 4 made it to 5dt, 1 blast and 1 8 cell transferred. No frosties. BFN
IVF #2: AFC 21, MD lupron 12/25, 225bravelle/150men, 4R/4M/3F, 5dt of 1 blast BFN
IVF #3: natural start antagon, starting 3/30, ER 4/11, 12R,11M,10F
.
[IMG]http://i248.photobucket.com/albums/gg174/pixydust3084/April_V2.jpg%5B/IMG] 
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11-13-2012 at 12:46 PM
Crystal120...
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Crystal120410 is online. Last active: 05-23-2013, 12:41 PMBronze

Even though its not the best news its not the worst either. Now you know the problem and can move forward to fixing it. Your one step closer than you were yesterday. Im very sorry about it not being what you were hoping for but hopefully they can figure out how to get those swimmers out of there and get you KU with out to much of a delay. Wishing you the best!!!
Married 9-10-11
Together 6 years before marriage
Me 26 DH 28
TTC since 9/2011
Dx endo 2007 Sx laparoscopy
End bcp 9/2011
Dx annovulatory, DOR, Low AMH
Hysteroscopy due to polyp 2-1-12
IUI#1-3 Cancelled due to low response
IUI#4 BFFN
IVF#1 8/30 Beta#1 256, 8/31 Beta#2 482 BFP!! M/C 5w3d
FET#1 Cancelled due to uterine fluid and thin lining
FET#1.2Cancelled due to abnormal bleeding
Hysteroscopy 12/28/12 All clear
FET#1.3 2/2013 Cancelled
FET #1.4 3/19 BFFN
Good Luck to All!!
Crystal
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11-13-2012 at 12:55 PM
Firefly062
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Crystal120410:

Even though its not the best news its not the worst either. Now you know the problem and can move forward to fixing it. Your one step closer than you were yesterday. Im very sorry about it not being what you were hoping for but hopefully they can figure out how to get those swimmers out of there and get you KU with out to much of a delay. Wishing you the best!!!

This. 

If they're 100% sure he's producing sperm and they can go in there and get it, that's kind of awesome news! I'm sorry you're sad and that it will be a harder road than you hoped for, but in the end it will be worth the journey, right?  I hope that you feel better soon and that the rest of the genetic testing goes well!
TTC since Sept 2010
Aug 2011 - SA reveals no sperm
Jan 2012 - biopsy, b/w = Sertoli-only syndrome, DH doesn't make the cells needed to make sperm, moving on to DS
IUI# 1 - 4/1/12 - BFN
IUI# 2 - 5/4/12 - BFN
IUI# 3 w/ Clomid - 6/4/12 - BFN
IUI# 4 w/ Clomid, new donor - 7/5/12 - BFN
IUI# 5 w/ Clomid & trigger shot/Novarel - 8/3/12 - BFN
~Cycle Off~
IVF# 1 - 19 eggs retrieved, 18 fertilized, 8 frosties. 5-day transfer. Beta #1 - 11/20/12 - BFN
FET# 1 - 1/23/13 - BFP - beta 2/4/13 - 266, beta 2 - 623, beta 3 - 1452 Due Date = 10/10/13
You, Me and Someone Else - updated 4/10/13 - Typical

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11-13-2012 at 1:10 PM
jenn0620
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jenn0620 is online. Last active: 05-23-2013, 12:40 PMBronze
I'm sorry about the diagnosis! Like PP said it's good news that they are sure there are sperm in there. It is scary to be told IVF with ICSI is the only option, I remember that day too well. Atleast there is a chance, keep your head up! Good luck to you and keep us updated!
Anniversary
Infertility blog
Trying for a baby since 4/10
DX: Infertile 6/11 Me: LPD, all other blood work clear. May/ 2013 Egg maturity and quality issues.. DH: low sperm motility,low count.
Met with RE start clomid + TI + IUI 5/12= IUI cancelled due to positive Cystic Fibrosis carrier test. DH tested Neg. for Cystic Fibrosis,
6/12 Clomid + TI +IUI=BFN 8/10 IVF consult.
IVF #1 Started BCP 9/2 Lupron 10/11 stims 10/27 ER 11/6!! 5 eggs retreived only 1 mature. FERT report shows none made it.Cancelled cycle.
IVF #2 BCP 11/18 Lupron 12/14
Stims start 12/29 ER 1/8 ET 1/11 put in 1 grade B and 1 grade C. Beta: 1/20=BFN
Second opinion at new clinic TBD
decided to stick with old clinic with new plan.
5/3 started metformin for IVF # 3 set to start in July!!!
Everyone Welcome! 
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11-13-2012 at 1:31 PM
MrsGlitter...
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Wow. I'm sorry that you got such a diagnosis, but it must be a relief to have a diagnosis. That's really good that the uro is positive your H is producing good sperm! Best wishes to you and your H that you have a relatively stress free and smooth IVF cycle!

TTC since October 2008My Infertility History is listed in my Blog
My Blog
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11-13-2012 at 1:50 PM
BellaLux
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Just take some time to allow it to soak in, it's really overwhelming. Getting answers is good, but being told IVF is your only option is difficult to deal, it does give you hope, but let's not forget it still costs lots of $$ and no guarantees. Good luck!
~TTC#1 Since July 2011~
Dx: 10/10 - Fibroids; 6/12 - Tubal Infertility
9/12 -IVF w/ICSI (Antagonist Protocol)=BFFN
Next: Feb 2013 -Myomectomy
S/PAIF Welcome
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11-13-2012 at 3:01 PM
oO Angie O...
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oO Angie Oo is not online. Last active: 05-23-2013, 10:37 AMNewbie

I have a friend who's husband wouldn't ejaculate at all, literally nothing at all.  They had to extract the sperm from him and then they got pregnant twice with IUI.  

Not sure if my friend's husband's situation is similar to your husbands, but good luck to you.   

 
Me: 29 w/ unexplained IF DH: 32 perfect and healthy Married: 10.25.07 Unexpected and very surprising BFP in Feb 2007. M/C April 2007. :( TTC since 2008 Metformin- no improvement Clomid 50mg/Provera cycle #1 7/2009 - BFN Clomid 50mg/Provera cycle #2- 8/2009- BFN Clomid 100mg/Provera cycle #3- 1/2010- BFN ...Took a break... 2012- Met with RE DH sperm analysis- all good Prescribed Synthroid for slightly elevated TSH levels 11/12- HSG all clear 1/13- IUI with Femara and trigger shot on 1/31- BFN 2/13-IUI #2- cancelled due to low response 3/13- IUI #3 Femara and trigger shot- BFN 4/13- IUI #4 in the works.  
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11-13-2012 at 4:08 PM
LaineyPane...
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If you don't mind a PAIF post, I'm here to say: allow yourself to receive and process this information. It's okay to be sad about it, and then you can move on. There is technology out there to help you guys with MFI. ICSI was certainly not at the top of our 2012 Wish List, but it helped us get to the top of that wish list!

Good luck!
It's okay to grieve the loss of your envisioned journey.
wedding countdown  
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11-13-2012 at 4:37 PM
Enchanted6...
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Enchanted616 is not online. Last active: 05-22-2013, 12:58 PMBronze

Thank you everyone who responded.  I am already feeling better.  I know we are lucky in so many ways, that MH is producing sperm and we do have a game plan.  The initial shock was overwhelming.  I think I will feel so much better once we get the genetic testing over with as well. We are going to do that ASAP and hope for summer 2013 for IVF #1.

Sorry I didn't quote, but to the poster who talked about IUI - apparently that wouldn't be an option for us because although MH is producing sperm, they are never leaving the testicles so they don't know how to move and would be unable to fertilize my egg.  That's why we need the ICSI.

Thanks so much!  Excited to get to know all the "faces" and stories over here. :)

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Finished BC and not preventing since June 2010.
Actively trying for baby #1 since July 2011.
SA completed 5/29/2012. No sperm found.
11/12: Dx: Congenital Bilateral Absense of the Vas Deferens.
Genetic Testing needed as this is a mutation of Cystic Fibrosis.
IVF #1 with ICSI planned for 2013.
PAIF/SAIF welcome!  
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11-13-2012 at 5:11 PM
oO Angie O...
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oO Angie Oo is not online. Last active: 05-23-2013, 10:37 AMNewbie
Enchanted616:

Sorry I didn't quote, but to the poster who talked about IUI - apparently that wouldn't be an option for us because although MH is producing sperm, they are never leaving the testicles so they don't know how to move and would be unable to fertilize my egg.  That's why we need the ICSI.

 Okay, got it.  Well good luck to you and DH.  After I posted that, I thought "maybe I don't quite understand what's going on" and then tried to delete my post.  Hope everything works out for you.  
Me: 29 w/ unexplained IF DH: 32 perfect and healthy Married: 10.25.07 Unexpected and very surprising BFP in Feb 2007. M/C April 2007. :( TTC since 2008 Metformin- no improvement Clomid 50mg/Provera cycle #1 7/2009 - BFN Clomid 50mg/Provera cycle #2- 8/2009- BFN Clomid 100mg/Provera cycle #3- 1/2010- BFN ...Took a break... 2012- Met with RE DH sperm analysis- all good Prescribed Synthroid for slightly elevated TSH levels 11/12- HSG all clear 1/13- IUI with Femara and trigger shot on 1/31- BFN 2/13-IUI #2- cancelled due to low response 3/13- IUI #3 Femara and trigger shot- BFN 4/13- IUI #4 in the works.  
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11-13-2012 at 9:18 PM
Love4Labs3...
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Love4Labs326 is not online. Last active: 05-23-2013, 8:20 AMBronze

LaineyPaney:
If you don't mind a PAIF post, I'm here to say: allow yourself to receive and process this information. It's okay to be sad about it, and then you can move on. There is technology out there to help you guys with MFI. ICSI was certainly not at the top of our 2012 Wish List, but it helped us get to the top of that wish list! Good luck! It's okay to grieve the loss of your envisioned journey.

 This is great advice.  Take some time and good luck to you!  I hope the genetic testing all comes back good. 
230737_2003784652243_5215174_n
Mr. & Mrs. since March 26, 2011
TTC #1 since May 2011 ~ Everyone Welcome
ME(29) ~ DOR due to chemo and radiation, FNH, Hypothyroid
Ewing's Sarcoma ~ 9/30/92 ~ CURED!!!
DH(29) ~ Oligoasthenoteratozoospermia, Low testosterone
7.5 million spermies on ice!
IVF/ICSI/AH planned for June 2013
Vivelle, Progesterone, HGH, Dexamethasone
Femara, Bravelle, Menopur, Ganirelix

 
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11-13-2012 at 9:35 PM
jschwind22
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Aww Chant!  I'm sorry about the diagnosis.  BUT, he has sperm!  That's a victory!  You have an answer now and can make plans to move forward.  Good luck at your next appointments!  ((hugs))
My Chart
May 3T Siggy Challenge- Dream Vacation- Italy
May TTGP Siggy Challenge- Superheros

TTC #1 since February 2011
Me: 29 (high NK cells diagnosed 3/5/13)
DH: 28 (MFI low morph and motility diagnosed 5/8/12).
RE is recommending IVF but we want to start with IUI. DH was unwilling to pursue treatment until 7/21/12.
Cycle #21- Injects + IUI #1= BFFN
Cycle #22- HSG 9/21/12 all clear= BFFN
Cycle #23- Injects + IUI#2= BFFN
Cycle #24- IVF #1- ER 12/6/12 (14R, 11M, 9F), ET 12/9/12 transferred 2 day 3 embies
Beta #1 10dp3dt=3 (-). Beta #2 12dp3dt=6.6 (+). Beta #3 39.1 (+)
Bleeding and low betas=very cautious Image and video hosting by TinyPic C/P 5W3D
Cycle #26- Diagnosed high NK cells 3/5/13. FET scheduled 3/20/13- CANCELLED- lining issues
Cycle #27- Starting Trental for 3 months for new FET protocol. Natural cycles until FET in August
PAIF/SAIF/ALL Welcome! 
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11-14-2012 at 7:04 AM
Enchanted6...
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oO Angie Oo:
Enchanted616:

Sorry I didn't quote, but to the poster who talked about IUI - apparently that wouldn't be an option for us because although MH is producing sperm, they are never leaving the testicles so they don't know how to move and would be unable to fertilize my egg.  That's why we need the ICSI.

 Okay, got it.  Well good luck to you and DH.  After I posted that, I thought "maybe I don't quite understand what's going on" and then tried to delete my post.  Hope everything works out for you.  

No worries!  I asked about IUI too.  :)

Image and video hosting by TinyPic
Finished BC and not preventing since June 2010.
Actively trying for baby #1 since July 2011.
SA completed 5/29/2012. No sperm found.
11/12: Dx: Congenital Bilateral Absense of the Vas Deferens.
Genetic Testing needed as this is a mutation of Cystic Fibrosis.
IVF #1 with ICSI planned for 2013.
PAIF/SAIF welcome!  
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