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11-23-2012 at 8:52 AM
briterawk4...
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briterawk44 is not online. Last active: 02-18-2013, 10:30 AMNewbie

Brain surgery and pregnancy

Hi all,

I have a rare and large 4.1x4.5 Acoustic Neuroma (benign tumor in the brain) and pregnancy that I found out about this month. For those that never have heard of this kind of tumor is sources from the balance and acoustic nerves, is benign and very slow growing. It causes severe hearing loss (mine is gone in the right ear), vertigo, and balance issues. Luckily it is extremely rare, especially for being 28 and pregnant (handful of cases in the world).

To my surprise, the week before my surgery we found out that I was pregnant.  None the less, my urgent surgery was postponed until after the birth, although, we are checking for a second opinion. Has anyone else undergone brain surgery while pregnant or post-pregnancy?

I am extremely scared for my high-risk case, but thanking God that I found out I was pregnant before having an inevitable involuntary abortion during the surgery. Your advice and thoughts are appreciated.
 
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11-23-2012 at 9:52 AM
PrimRoseMa...
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PrimRoseMama is not online. Last active: 05-20-2013, 11:19 PMGold
I have never experienced this. I'm sorry you are going through this.

I just wanted to post to congratulate you on your pregnancy and wish you the very best.
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11-23-2012 at 11:49 AM
blue_elle
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blue_elle is not online. Last active: 05-20-2013, 8:09 PMSilver
No advice here, just wanted to say that I hope everything goes well for you. 

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11-23-2012 at 1:24 PM
shelbell10...
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shelbell1028 is not online. Last active: 05-20-2013, 9:29 PMSilver
No experience but I just wanted to say congrats on your pregnancy and I wish you the best of luck with everything.
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11-23-2012 at 8:14 PM
oliversmom...
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No experience on this, but best of luck to you. Please update everyone. 
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11-24-2012 at 5:40 PM
kristinrae...
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kristinrae914 is not online. Last active: 05-20-2013, 8:33 PMSilver
Do you have a neurologist?  Or just a neuro surgeon?  I would suggest having a consult with a neuro to discuss the pros/cons of waiting v. having immediate surgery.  Even go for that second opinion. I am just speculating, but I would think any anesthesia and pain killers would be completely out of the question at this point.  I have a benign tumor on my pituitary gland but haven't had surgery suggested.  Just bi-annual MRI's and migraine meds.  It's not the same situation at all, but I can relate to how stressful and scary this can be.  Hugs.  Good Luck.
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12-04-2012 at 8:01 AM
briterawk4...
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briterawk44 is not online. Last active: 02-18-2013, 10:30 AMNewbie
Thanks for sharing. I've been working with an otologist and neurologist on this for about 2 months and am about to have my second opinion on Friday. From the research (which there only a handful), some wait until the second trimester and some (like my team) want to wait 2 months after the birth. I will keep you all updated.
 
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12-04-2012 at 9:50 AM
MotherMayE...
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MotherMayEye is not online. Last active: 05-20-2013, 11:59 PMSilver

briterawk44:
Thanks for sharing. I've been working with an otologist and neurologist on this for about 2 months and am about to have my second opinion on Friday. From the research (which there only a handful), some wait until the second trimester and some (like my team) want to wait 2 months after the birth. I will keep you all updated.

Thanks for the update. Good luck!

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03-23-2013 at 7:25 AM
brelynj
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Hi. I am so sorry. I had my baby boy three days after u posted this. But was having symptoms of an AN at the time. I was just diagnosed with a small acoustic neuroma. I am worried about getting pregnant again. Wouldn't a crainiotomy make for a difficult pregnancy?
 
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