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11-28-2012 at 5:19 PM
LosingHope...
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Joined on 08-23-2012
5,411 Points
LosingHope123 is not online. Last active: 01-14-2013, 2:35 PMNewbie

help.. positive ana REPOST

I am reposting this from the miscarriage board.. just wondering if any of your RE found this and treated you differently... Wondering if anyone has any experience with this...

  am having a HUGE panic attack right now.. please help.

I have had Rheumatoid arthritis and uveitis since I was 2.5. If you read my siggy you will see 2 pregnancy losses and, 4 ivf and 1 fet failure. (1 fet was a loss).

My RE kept poo-pooing my reminding him I had JRA... now all of a sudden.. after 2 years and 2 losses and multiple failures.. he reads the bloodwork from my rheumatologist that my ana is elevated (1:80 and speckled).

He tries to write it off as "theoretically" being a factor and that there "Isn't much you can do about it". Everything I read online says that YES it can be a factor in recurrent losses and YES there is something you can do about it... (steroids, blood thinners etc).

I am FLIPPING out feeling that we wasted the last 2 years of our lives... used up all of our insurance with this DR who obviously had no clue what he was talking about with difficult cases... WHY DIDN"T HE RUN AN ANA 2 YEARS AGO WHEN I TOLD HIM I HAD JRA??

I am beside myself with grief all over again. I may have killed my babies.. I should have pushed the issue when it nagged at me.. nowhere to go from here...

 
11-28-2012 at 6:00 PM
Scoop77
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Joined on 08-10-2011
10,350 Points
Scoop77 is not online. Last active: 05-21-2013, 3:10 PMBronze

First of all, you did NOT kill your babies. Please do not ever, ever say that. Your pregnancies were much-wanted. 

Second, it is sad that your RE seems to be so off on this, and I'm sorry that you've had to go through what you've gone through. I'm very sorry for your losses. Unfortunately you can't get those two years back and nothing your RE can say or do now will rewind the time.

But--and this is a big 'but'--you do not know whether those treatments would have prevented your losses or gotten you pregnant. Unfortunately there is no magic with an ART cycle. Women who are getting proper treatment have failed cycles and losses all the time, sadly. You're obviously correct that there ARE things that can be done, but you might have had the losses and the failed cycles even with treatment.

I say this only so that you do not point the finger at yourself or play the horrible "what if" game. I have tortured myself with my loss, going over every day in minute detail to see if I did something wrong. Did I eat something that caused an m/c? Was I too stressed? What if I had done this? What if I had done that? Ultimately, I will never know "what if." And I did nothing to intentionally cause a miscarriage. So I am not to blame. And neither are you.



TTC #1 for about 3.5 years
ME: 37, PCO, immune issues?, teflon uterus (my added diagnosis)
HIM: 38, Perfect. (Showoff.)
Month before starting Clomid, spontaneous pregnancy. m/c at 7 weeks and D&C.
Four months of Clomid, one IUI, with Intralipid each cycle: BFNs all
IVF 1.0 July 2012 -- Lupron, bravelle, menopur, estrogen, progesterone supps, intralipid. 14 ER, 14 fertilized, 1 blast transferred, 2 on ice. BFN
FET 1.1 -- 10/2, transferred our 2 blasts. Lupron, PIO, estrogen, baby aspirin, prednisone. BFN.
IVF 2.0 December 2012 -- Bravelle, Menopur, Ganirelix, Prednisone, Metformin, estrogen, progesterone supps. 22 eggs retrieved on 12/14, 17 mature, 15 fertilized. OHSS anticipated so ET cancelled. 3 embryos frozen.
Broke up with old RE. Moving on to new dude. Maybe the change of scenery will be just the trick for our frosties. On BCPs for possible April FET.

P/SAIF welcome 
11-28-2012 at 9:48 PM
JSM0801
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Joined on 07-11-2012
12,225 Points
JSM0801 is not online. Last active: 05-17-2013, 8:51 AMBronze
I just wanted to say that i am so sorry you are going through this. It is truly amazing that doctors know so much yet know SOOOO LITTLE!!! You have every right to feel frustrated and angry right now. Sometimes i fantasize about murdering some of these doctors, lol! I really hope they can figure out your situation and fix it ASAP! GL and hang in there!

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Me (33)- unexplained MH (35)- MFI due to Vericocele. Straight to IVF w/ICSI 9/12, Antagonist = BFN c/p, poor quality blasts, tested sperm dna fragmentation. Results all good, yay! New RE for IVF #2- 1/13., Long Lupron. ER on 1/22 -10R, 9M, 9F. Transfer on hold due to overstimming. FET in Feb. 2 frozen blasts. Another BFN & another c/p. RPL testing all negative besides MTHFR gene, vericocle repair surgery 4/12/13-Bilateral Grade 3 Vericocele found & fixed, IVF #3 with PGS 4/13- 11R, 9M, 9F. Transferred 2 normal=BFN, 3 normal on ice Everyone Welcome!!!
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11-29-2012 at 6:19 PM
MsGMChick
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Joined on 01-27-2009
VA
8,011 Points
MsGMChick is not online. Last active: 04-21-2013, 8:40 AMSilver
First, ((hugs))!! I don't know anything about JRA but I wanted to say I was sorry. And you did NOT kill your babies. I had the same feelings with my MC- sometimes it's just how we think- but the reality is you did not do it on purpose and you couldn't have changed anything. :(

. .
|| 3 years TTC, 2 M/Cs 4 failed IUIs, 1 failed IVF...
and we're moving on! Domestic Infant Adoption ||


He who has a why to live, can bear almost any how... 
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