anonsouthernbell::hugs: we had problems with ds too. Turns out it was bc of gluten and dairy. Are you feeding solids now? How long since you stopped bfing?
No solids yet. I gave her a piece of banana the last two days. She maybe got a few tastes in her mouth. She was horribly upset and crying for hours the last two nights. Not sure if it's related. I stopped BFing at 4 months. She has been on Neocate only for almost 2 months. Before that, we tried Nutramigen which was a huge fail. I am going to stop trying any solids until the endoscopy. I don't want to cause more tummy upset.
She is also on Prevacid and Zantac, doses adjusted for weight. Her GI provider (a nurse practitioner) is excellent and I feel she is in good hands; I am just impatient.