I do something a bit different, though slightly related...
About a 9 months ago, DH went to a symposium on special needs. There, he talked to many different people from lawyers to financial planners.
One thing the lawyer said that really stuck out to DH (and to me), is that every year, you should create a document which is all about your child (in case you pass away and someone else has to take over care of your child). This document should lists your child's doctors, describe their routines, touch on your child's likes and dislikes, etc.
In May, DH and I took a 3 day vacation for our anniversary, and I created the document for my parents to use since they were watching Lily while we were away. And, I guess it worked well, because at one point during our trip, Lily was pulling on her ear, and my mother thought she might have an ear ache. And, due to the binder, my mother was able to contact Lily's pediatrician and get everything squared away before we even knew anything (FYI, Lily did not have an ear infection. The Pedi told my parents that since there was no fever they didn't have to come in. And, I am sure if Lily did have a fever, we would have known about it right away).
I think someone could easily combine this document with a medical binder. The sections of our "All about Lily" manual are listed below...
Permission to Treat Release - if you are going away, but your child is staying with someone.
Insurances - What insurance does your child have? Where are the insurance cards? What's the insurance contact information? What are your co-pays?
Medical Consitions - List all of your child's medical conditions and provide a brief description (list symptoms).
Doctors and Therapists - List names, specialties and contact information for all doctors and therapists.
Medications - Provide name of medication (provide common name if applicable), dosage, when it is given, why it is given, where it is stored and if there are any major side-effects. Also provide pharmacy information.
Prior Surgeries and Hospitalizations - List all prior surgeries and hospitalizations. Specify what the surgeries and Hospitalizations were for, and how long your child stayed in the hospital.
Caregivers - If your child has any other caregivers (family members, friends, day cares) then list them here. Make sure to provide contact information and any special considerations (i.e. Daycare requires a legal guardian signs the child out).
Therapy - List the therapies your child gets. Provide the therapists name, where the therapy takes place, when it takes place, and why your child gets it. You could easily include a milestones check-list here. But, don't forget to mention if there is a copay to pay, or if there is a special sign-in/sign-out procedure.
Respiratory - Here, I list specific details about Lily's respiratory status (where special equipment is, what it's used for, how it's ordered, how to manage Lily's care including how to change the trach and ties. And, I list some examples of respiratory distress, as well as what to do in those instances). You could put a section devoted to a condition your child has.
Feeding - What does your child eat? What will your child NOT eat? Are there special considerations when it comes to feeding your child (i.e. Allergies, aspiration risks, etc.)? If you are a G-tube Mommy, you would want to mention if your child is pump fed or bolos, how the extension is hooked up, what your child eats (i.e. if your child is on a mixture of purees, then you would want to list the recipe here), when your child eats, and how much s/he eats per session. Don't forget to mention if your child gets free water throughout the day.
Sleeping - When does your child sleep? Where does your child sleep? Do you rock him/her to sleep, or do you have a special bedtime routine? What about naps?
Favorites - What's your child's favorite activity? What's your child's favorite toy? Does your child have a favorite book? If your child is not mobile, does your child have a favorite position for play? If your child watches T.V., does he or she have a favorite TV show?
Schedules - This is a quick Exl file which lists each day of the week, and your child's schedule for that day (therapies, school, feeding times, typical nap times and bedtime). If you are creating this document for someone else to watch your child for more than 24 hours, then you may want to add travel times from your house to their various appointments.