I'm sorry I ended my post like that....depending on the severity, there are definitely options. We knew doing a heart cath was our first option, but what we were told is that it's a temporary fix and the stenosis typically returns in 6-8 weeks. With severe cases, which we were, we were looking at a lung transplant.
Our son was born at just 12 ounces. At the time of the diagnosis, he was over 7 pounds, but the doctors told us he needed to get to about 10 pounds before taking him to the cath lab. Because we were also dealing with recovery from NEC surgery, we simply never made it and his heart gave out.
The current chemo study is trying to treat the stenosis similar to chemo since it returns. And the chemo is trying to stop the return.
Again, please PM me and I can give you more information. I believe I still have all the printed research, including the Japanese info.