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12-22-2012 at 10:00 AM
littletex7...
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Joined on 12-22-2012
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littletex74 is not online. Last active: 05-12-2013, 7:18 PMNewbie

Verifi 21 Suspected Strong Nasal Bone?

My blood work put me in the range of 1/20 for down syndrome. Not wanting to risk miscarriage with an amnio, I shelled out 1200 dollars for the Verifi test. My results fell in the positive range, but under "suspected" as opposed to "definitive." The OB said that in suspected, there's only a 5 percent chance it's a false positive, which I take to mean that it's 95 percent possible my baby has DS. Here's the thing I keep holding onto in the weeks while we wait for our scheduled amnio to confirm: the 11 week ultrasound picture showed a strong nasal bone. And I can't find any info on the internet about DS babies that looked fine on the ultrasound. Anyone have experience with false positives on Verifi, or u/s images that seemed to indicate things were fine when they weren't? Thanks. Worried sick about all this.
 
12-22-2012 at 10:25 AM
Teacher Cl...
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Joined on 06-06-2008
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Teacher Clark is online. Last active: 05-19-2013, 6:14 PMSilver
Unfortunately, many moms don't know their baby has Down syndrome until they are born. Even when nothing is apparently wrong on an ultrasound a baby can still have DS. I'm so sorry you have to go through this stress.

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12-22-2012 at 12:22 PM
santjust
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santjust is not online. Last active: 05-18-2013, 9:37 PMNewbie
Hi I didn't have the verifi. But I had my nt scan show a strong nasal bone then my bloodwork came back 1:24. We saw a genetic counselor and opted for an amnio. LO is our first and we had an early bleeding scare so we just wanted to make sure he was ok. They explained the miscarriage risk,and while there is a chance the odds outweighed the chances for DS. We were very positive and I did research on how to prepare for a baby with DS just in case. The only complication with the amnio I had was a small amniotic fluid leak, I had to double up my water intake that day and stay in bed. By the evening the leak stopped and then the waiting game, we had opted for the two day results. But on the Saturday the genetic counselor called and said our results were inconclusive. Which freaked me out ,but she explained how sometimes the labs don't have enough of the child's cells separate from the mothers and the lab would cultivate more cells to give us a 100% answer so we would have to wait the 10 days. At my MFM appointment 10 days later we found out he is ok and no DS. My advise to you is to stay positive ,don't stress yourself out thinking of the odds. If it makes you feel better you do some research on what to expect, but if you feel this is too much don't do it either. Be positive and think of all the love you already have for your little one that won't change. My thoughts and prayers are going your way! 

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12-22-2012 at 1:26 PM
caden1206
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Joined on 09-08-2012
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caden1206 is not online. Last active: 05-19-2013, 11:43 AMSilver
I don't have experience, but I hope you can get answers. Prayers.

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12-22-2012 at 1:58 PM
beetaba5
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Joined on 03-24-2009
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beetaba5 is not online. Last active: 05-04-2013, 2:45 PMNewbie
I feel like I lost a full week of my life worrying about this. Our 16 week bloodwork came back with a 1/5 chance of downs, after a great nuchal scan. We did the harmony bloodwork bc we were on the fence about amnio, but decided to go for it since it is diagnostic and we wanted to know for sure. Luckily everything came back normal and it was alot of worries for nothing, so I hope the same happens for you. Try to stay positive and prayers are being said for u right now. Good luck!

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12-23-2012 at 11:01 AM
littletex7...
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Joined on 12-22-2012
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littletex74 is not online. Last active: 05-12-2013, 7:18 PMNewbie
Thanks, all, for the prayers and sharing. Going to be a stressful few weeks, but trying to relax and stay hopeful. Happy Holidays.
 
01-15-2013 at 8:09 PM
littletex7...
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Joined on 12-22-2012
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littletex74 is not online. Last active: 05-12-2013, 7:18 PMNewbie
Well, had the amnio yesterday and got my FISH results today: negative. Of course, the FISH can't identify mosaic downs, so we won't know the full picture for another week, but my fingers are crossed. The theme of our lives the last two months has been "WAITING." My heart goes out to anyone in this situation. I am hoping to be one of the few Verifi false positives. More to come ...
 
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