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01-11-2013 at 2:24 PM
kinggatr
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Joined on 02-06-2008
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kinggatr is not online. Last active: 05-03-2013, 2:11 PMNewbie

Talk to me about baby helmets for reshaping a head

 We had an appointment with a specialist last week and she suggested our 10 month old baby wear a helmet to correct his soft spot. We went to an appointment this afternoon to get him fitted and the helmet will arrive in about 10 days. He did great at the appointment and didn't have any trouble with the photos or the scan. He is such a trooper. It looks like we may be getting one of the clear helmets but that will not be determined until the measurements are analyzed this afternoon. I am looking for advice, preparations, anything that might help. I was upset when I found out that he would definitely need it but I am slowly coming to terms with it. I can't remember seeing a baby in one of these helmets before last week. Did I not notice them or have I just not seen anyone? How do other people react when they see a child wearing one? I know he is young and probably doesn't care but I just don't know what to expect. We plan on decorating the helmet with stickers to make it less clinical looking and try to make this a fun thing. What kind of stickers should we use? I would like something that can be easily removed (not so much so that our son can remove them!) so we can customize it for holidays or just to change it up. This has been emotionally taxing...

It looks like he will be wearing it for 3-6 months depending on his growth rate.

Any stories or advice would be helpful.  

Thanks. 


Fibroids discovered and removed October 2005. Pathology came back with suspicious results (potential cancer) and had a partial hysterectomy January 2006. I still have both ovaries. September 2009, DH and I travelled to Mumbai, India for gestational surrogacy but it didn't work. We tried again September 2010 and it didn't work again. By this time we decided to expand our family through adoption. Home study completed February 14, 2011. Matched with a birth mom August 1, 2011. Match failed September 8, 2011. Matched with a new birth mom January 2012. Our baby boy was born March 6, 2012.  Baby Birthday Ticker Ticker 
01-11-2013 at 8:35 PM
orangetuli...
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Joined on 07-11-2011
510 Points
orangetulips12 is not online. Last active: 05-08-2013, 9:34 PMNewbie

My son is 10.5 months and he has a helmet.  Part of his head was flat from torticollis.  He got his helmet around Halloween.  We were instructed for him to wear it 23 hours a day.  Instead of 2 half-hour breaks, we give him 2 one hour breaks a day, so he has been wearing it 22 hours a day.  He goes to physical therapy one night a week at a Children's hospital where they do stretches and play toys with him.  During 'playtime' they encourage him to turn his head to strengthen his neck muscles.  

He gets remeasured for his helmet and they adjust it every few weeks.  At his appointment last week they said his head has approved greatly.  If he came into the office last week for the first time they would say he did not need a helmet.  So, two more weeks from today he is done with it.  I never thought I would say this back in Oct, but I'm actually a little sad he won't wear it anymore.  He looks adorable in it.  The helmet pushes his cheeks together and he looks really cute. 

I'll be honest and say the reactions I received in public with my child has been mixed.  Some people stare.  Others make rude comments--'what is wrong with your child."--I really should have answered the person by saying what is wrong with you.  The majority of adults smile and don't say anything.  Often, little children will whisper to their parents about my son and the parents say, "oh, isn't he so cute."   

The helmet has really helped reshape my son's head.  I'm glad he got it to help his head.  My son barely ever notices it is on.  He only complains when we take it off or put it back on and cries for about 30 seconds.  I was also upset when I first learned he needed one.  As I wrote earlier, my son doesn't have to wear it anymore in 2 weeks.  Time goes very quickly.  

 

 
01-11-2013 at 9:23 PM
buzzbee24
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buzzbee24 is not online. Last active: 05-22-2013, 8:01 AMNewbie

My DS wore a helmet from 4.5 months to 8.5 months. He recently had it removed on 12/19. His head differential went from a 6.2 to 1.2 HUGE IMPROVEMENT! In fact, they said that at that particular office, they had never seen such a great correction number. You can't tell he ever had a flat spot. I am a believer in the benfit of helmet correction.

Back story:

He was diagnosed with congenital sternomastoid torticollis at 2.5 months, and plagiocephaly as a result. The back left side of his head was flat and his forehead on the right side was slightly bulged. His ears are still slightly misaligned (not noticeable at all) but the helmet does not correct ears. We tried from the minute we were told to do sleep repositional therapy, which help a bit, but not enough, so we opted for the helmet. DS also went to physical therapy once a week at Childrens and I also had an in home physical therapist once a week. Figured if we attacked it aggressively, we wold resolve the issue faster while DS was still fairly young and hitting major growth spurts...it helped tremendously!

We decided on the clear for various reason, mainly we were told they were more hypoallergenic and tend to stink less. We cleaned the helmet once daily with 70% rubbing alcohol, then a quick once over with DS usual body wash. DS wore the helmet 23hrs a day. I would take it off for an hour each night during bedtime routine. We also washed his hair nightly.  We also decorated his helmet for holidays and events. I got some decals from blingyourband.com and also hit up the fabric and hobby shops and made decor for it. Beleive it or not, clear packing tape helped tremendously with some of the decor. I only ever had one rude comment as far as questioning in a judgey tone as to "what's wrong with that baby?" For the most part, some folks would stare a bit, but more often than not (80% of the time), people would comment on his cute "hat", some (mostly little children) would ask if it was a fashion thing or something else, but liked it either way. And some folks would tell me that they knew a child that had one or knew of a child that should've had one. Definitely a conversation piece! Lol. I never minded the stares, I would just give a "eff u whatever *** grin" in their direction, making them highly uncomfortable for being caught staring. It always made me chuckle. Big Smile

I was freaked out big time at first that he needed one, and the adjustment to wearing it was definitely on my end. He never minded wearing it. In fact, I kinda miss the helmet now as he's cruising around, when he had it and fell...no big deal, now, he feels the fall or bump on the crib...ahhhh I miss the protection it provided,,,and piece of mind for a worry wart FTM. 

In the end, when I saw how DS didn't mind it and when I thought about the alternative (having a flat head, being picked on by some bully for being different, lacking self esteem as a result) I knew it was the best thing for us. And he only had it for 3.5-4 months...very small blip on the radar of time.

Hope this helped! Currently, I am enjoying putting hats on him again and physical therapy is now down to one therapist, twice a month. She's just keeping tabs on him until those first steps in walking. They just want to make sure that the tort indeed has been resolved and he isn't favoring a side with that huge milestone. ( which they see no signs for favoring a side or tilt anymore)

Good luck to you and your family. I know it seems like a lot to deal with now, but after the first week or two with it, it becomes normal, standard (in fact I would forget it was time to take it off for the hour!)

Piece of advice, it takes a week for their body temp to get use to the trapped heat, just dress LO a slight bit lighter than usual. Also, have them drill holes in the back of it to let heat escape. Also, it will be a bit loose at first to allow some room to grow, that looseness will go away after the first week or two. It's a tad annoying, but temporary.

Please feel free to PM me if you have any further questions.


 
01-12-2013 at 10:10 AM
aeh72
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aeh72 is not online. Last active: 05-22-2013, 2:20 PMBronze

I know exactly what you are going through - the decision part of doing the helmet was the most emotionally taxing part of the process for us as well.  DS has been in a helmet for about a month and a half now (started right around 7 months) and we could not be happier with the decision! Yes, it was expensive (insurance did not cover it) but DS has made so much progress in such a short period of time so, already, we feel like the money was well spent.  We were told he would probably be in it for 3-4 months and our cranial specialist says we're right on track for that.   But, let me answer your specific questions below!

 

We had an appointment with a specialist last week and she suggested our 10 month old baby wear a helmet to correct his soft spot. We went to an appointment this afternoon to get him fitted and the helmet will arrive in about 10 days. He did great at the appointment and didn't have any trouble with the photos or the scan. He is such a trooper. It looks like we may be getting one of the clear helmets but that will not be determined until the measurements are analyzed this afternoon. I am looking for advice, preparations, anything that might help.

We didn't do much to prepare. They will give you all the instructions for how to care for the helmet. DS is in a Doc Band so basically, he wears it for 23 hours a day. We take it off in the evenings for an hour when het gets a bath and DH cleans the helmet with alcohol.  That's it - that's all the care it needs.  DS's head gets a little sweaty (so thankful we're doing this in the winter!) and the helmet gets a little smelly, but nothing overly pungent.

As for how your child will react - DS has NEVER been bothered by it.  What a little trooper he has been!  Truly, it was more of an adjustment for us than for him and we adjusted really quickly too.  I know every child is different, but everyone I've heard from whose child has had to wear one says their child adjusted really easily also.

 

I was upset when I found out that he would definitely need it but I am slowly coming to terms with it. I can't remember seeing a baby in one of these helmets before last week. Did I not notice them or have I just not seen anyone? How do other people react when they see a child wearing one? I know he is young and probably doesn't care but I just don't know what to expect.

People definitely do a double take, I think, but no one has ever said anything rude to us about it.  I've had multiple people stop me and tell me about their child's experiences with a helmet - all very positive stories. I love it when people do that.  It reinforces what we have already been feeling like was a great decision.  I've only had one stranger ask me what the helmet was for and he was very polite about it - was just simply curious.

 

We plan on decorating the helmet with stickers to make it less clinical looking and try to make this a fun thing. What kind of stickers should we use? I would like something that can be easily removed (not so much so that our son can remove them!) so we can customize it for holidays or just to change it up.

We were planning to do stickers and I was going to order from blingyourband.com (she's also on Facebook).  She had lots of cute designs.  But, DS got the helmet right before Thanksgiving, we went on vacation, and then we got back and got absorbed in the holidays and never ordered anything.  So, his is plain and will probably remain that way for the rest of th time!

 

This has been emotionally taxing...

It looks like he will be wearing it for 3-6 months depending on his growth rate.

Any stories or advice would be helpful.  

Thanks. 

It was hard for us to come to terms with it also. For us, his issue was cosmetic so we really struggled with our we overly concerned with vanity and should we spend the money on something cosmetic, but we decided we did not want to have him have any kind of struggles (being picked on for his head shape, sports helmets/hats not fitting, glasses not fitting) if we can do something about it. We are so happy we made the decision. So, hang in! You're in the hard part now - wondering how it's going to go/work.  And, I'm sure you'll be will be so happy with the results!  Feel free to PM me if you have any other questions along the way!


 Baby Birthday Ticker Ticker 
01-13-2013 at 1:00 PM
cc61712
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Joined on 10-11-2011
1,436 Points
cc61712 is not online. Last active: 02-17-2013, 6:07 PMNewbie

My daughter is almost 8 months (adjusted age is almost 7 months) and she will be getting her helmet next Thursday. She will have a Starband and her's is due to her Torticollis. Her jaw is misaligned and her head shape is off by a bit. Her case is considered Moderate with the exception of her jaw which they consider more severe. It's going to be a journey but we are excited to get it started and get her issues helped before it gets to the point of her needing surgery. 

Good Luck to you! 


Aubrey Josephine born on 5/18/2012 at 10:57am. 
01-16-2013 at 11:32 AM
tarajayne
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Joined on 11-14-2003
Battle Creek, MI
6,929 Points
tarajayne is not online. Last active: 05-17-2013, 7:33 AMBronze
A has had his for a few weeks. It is definitely harder for us than him. He doesnt mind when its on but the off and on he gets upset. We had a few really rough sleepingnights at the beginning too. For us the challenge is trying to keep it frompushing his glasses dowm or out of whack. Ours was also due to tort and they said it was just cosmetic until we talked to the neurologist and found out he has cerebral palsy and she said he needed it. I havent had anycomments from strangers but we only go out really to therapy and dr appts.  We did go to story time today though and there was another kid with one. Good luck! The ladies here have been extremely helpful.  I kind of wish my other son had one. He is constantly bonking his head!

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01-17-2013 at 1:39 PM
kinggatr
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Joined on 02-06-2008
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kinggatr is not online. Last active: 05-03-2013, 2:11 PMNewbie

Thank you all so much for responding. It has been such a relief to hear "real" stories and to get feedback. We pick up our son's helmet next Wed, Jan 23. We are getting the clear model and I have been looking at stickers and ways to decorate it. I am still anxious about it but I do feel a little better. I think I was in shock and overwhelmed by the whole thing. When I was giving him his bath the other night I realized he does have a flat spot but he has a lot of hair and it hides it really well. I guess I was just in denial and didn't want to travel this road. In the end, I want him to have a nice round head so it's not one more thing for him to worry about when he is older.  I keep hearing this is harder on the parents than the children and I guess it's true. 3-6 months will fly by and we'll make it as fun as can be. Once we get it and get used to it I guess it won't be so bad but I do still have feelings of dread. I just have to get over the hump... 

Thank you again for all of your stories and for letting me know what to expect. You ladies are great!


Fibroids discovered and removed October 2005. Pathology came back with suspicious results (potential cancer) and had a partial hysterectomy January 2006. I still have both ovaries. September 2009, DH and I travelled to Mumbai, India for gestational surrogacy but it didn't work. We tried again September 2010 and it didn't work again. By this time we decided to expand our family through adoption. Home study completed February 14, 2011. Matched with a birth mom August 1, 2011. Match failed September 8, 2011. Matched with a new birth mom January 2012. Our baby boy was born March 6, 2012.  Baby Birthday Ticker Ticker 
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